Tuesday, November 20, 2012

Slipping slowly

Rough night last night.  This slow death process is just nasty.  I am not liking this one bit.

Mom has been comatose since last Monday --- NINE days ago.  Of course except for Friday when she spent the day "visiting with angels".  During the past 7 days when they rotated her or swabbed her mouth or changed her she would have some facial expressions and utter a moan or two, maybe reach out with her arms.  Now she is just completely motionless -- still.

The past couple days her breathing has been very labored and last night was the worst.  Her lungs are beginning to fill with fluid and she is on a schedule of medication every hour now - morphine and lorazepam. Morphine has been being used the past 4 days for pain.  Now that she cannot express anything to us - and her breathing is so difficult, she gets an oral dose every 2 hours.  This is part of her hospice care and the staff here (assisted living - not a skilled nursing facility) cannot administer it - I have to do it.  Yesterday they added in the Lorazepam which helps her to relax  - as she has been having muscle spasms and jerking a lot, which frightens her.

So, every hour she gets medication orally and I am the one to administer it.  Hence, other than going home for one hour to shower each day - I have been here since Friday morning.  Today is Tuesday - I honestly didn't think I'd still be here.

Last night was the worst - Mom started with the tragic "gurgle" when breathing - she was fighting for every breath; heavy chest compression, just terrible.  I truly believe that we lost her twice last night - no breathing but her little heart just won't give out.  I have never been with someone who is dying and this is not what I was anticipating.  I am so very glad she is on morphine and non responsive as that would be even worse for me.  I feel so helpless watching her gasp and gurgle.  This is just sad.  We got her through her two episodes each time - after a long long pause and uttering that last slow and gentle exhale, she would be so still and peaceful- and I would think, YES!  she did it.  She is done.  And then, she'd take a deep breath.  My mom..... the energizer bunny.  I can't believe this lady!

At one point last night I had to take a break from the hourly medication administration as to be honest, I really have not slept since Thursday night.  I have been keeping a bedside vigil, holding her hand, swabbing her mouth, adjusting her blankets.  But last night I thought I was going to lose it.  I was so tired and so emotionally spent that I told the nurses to hold off for a bit on medication.  So I got 2 hours of sleep and now I feel energized.

Her kidneys are starting to shut down and usually that means the end is near.  Her hospice nurse will be in today (she comes daily) and give us a better assessment of where she is at. Yesterday her oxygen level was at 76 (90's) is ideal. Right now her breathing is intermittent but she is peaceful - no struggling like we had last night, no more muscle twitching and spasms.... she is so calm and quiet today.  Maybe today is our lucky day.

Mom, make today your day please - go join your family who lovingly await you.  You are done here as our mother, grandmother, great grandmother, aunt and friend.  Your mortal body is just to pooped to participate any further :)   Let go and embrace the loved ones who await you and watch over our little family and be a guardian angel to your grandchildren and great grandchildren - THAT, you can do. 


17 comments:

  1. Penny...since it's only been 3 months since my dad went in much the same way...I can truly empathize with you. I wish I hadn't gone home to sleep...I thought he was very close, but the CNA "assured" me he wasn't. He passed when I was home sleeping. You are a good daughter...I hope we can talk face to face about all of this someday.

    ReplyDelete
  2. My hope is that your Mom can let go and have peace. I am sorry you are having this hard time too Penny. It must be so emotionally and physically tiring. I am praying for yoyr Mom and you. I called the Los Angeles temple and put your names on the prayer roll. I love you my friend. -Ann

    ReplyDelete
  3. Hugs for you Penny from your friends who aren't physically in the room with you and your mom but send our spirit of happiness and relief to you as your mom transitions. You have been seeing her hold on as she was trying to stay strong and not pass while you waited, but now probably understands why you are there and you only want her to have peace and calmness. You have been a witness to an amazing time, and we all appreciate your sharing the journey of your mom's life with us.

    ReplyDelete
  4. WOW. WHOA. This is such a powerful process...both for her and for you. While we all "know" death is a given, we don't all know what it's like to go through the "passing" phase. Sharing your experience here with us is such a gift. I have tears in my eyes & wish I could walk into the next room to give you a huge hug (& bring you guac & chips!). As your writer friend, I also have to convince you that you DO have a gift. Your words are eloquently emotional and very well-crafted.

    I have missed your earlier entries here until today & now feel a deeper sense of empathy. What a gift you are giving your mom to be there for her during this unknown time. May she finally feel the peace she needs to let go and join her family beyond. And then you can let the relief wash over you as well. Rest and recuperate as best you can! Blessings to you all!

    ReplyDelete
  5. I went to visit a friend in a Seattle hospital who is dieing of cancer. He doesn't want to go and I'm sure it will be a long haul for his wife and family. As I sat talking to him, I realized that helping someone to die is one of the most Christ-like and selfless services we can give. You are a saint, Penny. Please try to take care of yourself.

    ReplyDelete
  6. My dearest Penny,
    I am so proud of you and my prayers and thoughts are with you during this time. You have helped bring life into this world (my children) and now you are helping life leave this world, what a wonderful woman you are. I know your Father could not do this without you.
    Much Love
    Caren

    ReplyDelete
  7. Penny Thanks so much for sharing such a personal time for you. We were with Raymond's dad for his last breath's. I want to warn you, when we thought it was he had passed about a minute after with no breathing and no pulse he popped straight up arms out took a deep breath and laid back down. They say it is very common. It scared all of us that were in the room. Just wanted to let you know, it was something we all wished we were warned about. Bless you Penny for all you are doing! Thank you for teaching me so much. ~Tina

    ReplyDelete
  8. I remember feeling how much more can she take or we take, but then when she's on the other side, you'll realize what a brief blessed time together it was. You can do it and so can she and your Dad. Sending empathy and love and prayers for a quick release hers and your way, yet the encouragement too to keep asking what else do I, she or others have to learn or do?

    ReplyDelete
  9. The time seems like long and hard now and it is; however when she is on the other side you'll begin to see the briefness and blessing of this time together. I pray for her quick release and say to just keep asking him what else you, she or others need to do, say or experience before it's time. Hugs!

    ReplyDelete
  10. This post is so "real". Thank you for giving us a glimpse of what is happening. You are an amazing daughter and I know your mom is aware of how great of care you are giving her. I will keep you all in my prayers!

    ReplyDelete
  11. My dear sweet Penny,

    Bill and I are with you in spirit. Your mother and the rest of your family are in our prayers as you cope with this life cycle of ours....it's so difficult. I read your words and wondered about my own mother in her dying moments, and I so wish I could have been with her as you are with Kay. You have been a loving and wonderful daughter to Kay, and she spoke of you so lovingly...always. So as she nears her last mortal days, know that she loved you so very much. She would want you to be strong of faith, as you have shown to be. Hugs, sweet girl.

    Love,
    C

    ReplyDelete
  12. Dear sweet Penny,

    Please know that Bill and I are with you and hold you and your family in our hearts. Your mother has been so blessed in having a daughter like you, and she loves you so much. She never hesitated to tell me what a wonderful daughter you are. If she were conscious, she would want you to be strong and faithful, as you have been, and she would be so proud of you. Please know that you are loved by her and by your multitude of friends as well. Give your Dad an extra hug from me too.

    Love,
    C

    ReplyDelete
  13. Dear Penny,
    I hope your wish comes true today. Caring for a parent is exhausting. I pray for you daily. My time is coming and I hope I can be as kind and patient as you have been. I remember Rick's grandmother dying...listening her ragged breaths was awful. I worried she was in pain but hospice kept her comfortable. You and yours are in my thoughts and prayers. Liisa

    ReplyDelete
  14. I hope your mom can go soon. It is exhausting to care for a dying parent both emotionally and physically. I only hope that I can be as kind and patient as you have been. You and yours are in my prayers and thoughts. Take care and know you are truly loved. Liisa

    ReplyDelete
  15. Dear Penny,
    I hope your wish comes true today. Caring for a parent is exhausting. I pray for you daily. My time is coming and I hope I can be as kind and patient as you have been. I remember Rick's grandmother dying...listening her ragged breaths was awful. I worried she was in pain but hospice kept her comfortable. You and yours are in my thoughts and prayers. Liisa

    ReplyDelete
  16. Penny, Dear Penny, your journaling of these past months of your mother's life and yours has been amazing. You will treasure those words over and over, and so will the next generation. And now you write about this,the most bitter/sweet time of all. It is no surprise that your mother continues to show her energy for life even as she is leaving it. How we loved to serve with your parents! You are the perfect daughter. I honor you! I honor Devin too, for supporting you through all your travels to be with your parents. Thank you for sharing, as that is not just a gift to each of us, but to your mother as well.

    ReplyDelete
  17. Penny, Dear Penny! Your journaling of your mother's life these past long months (years?) has been incredible - a tribute and a treasure you will be happy to have in the years to come. It is no surprise that your mother is using her energy for life to hang on. How we loved serving with your enthusiastic parents! You are a perfect daughter, and I honor you even as I pray for your own energy to hold out. I honor Devin too, for his support of your travels and time to be with your parents. Thank you for sharing these last bitter/sweet experiences, as they are not only a gift to we who read, but your to your mother as well. She will know. I love you! MaryLynne

    ReplyDelete